Heather Renton

Heather is the Chief Executive Officer and Founder of Syndromes Without a Name (SWAN) Australia. SWAN provides information and support to families caring for a child with an undiagnosed or rare genetic condition. Heather is the mother of two children, one of whom has a rare genetic condition called FOXP1 Syndrome. Heather is a consumer representative on a number of different advisory groups and committees and is a passionate health and disability advocate.